𝐋𝐨𝐧𝐞𝐥𝐢𝐧𝐞𝐬𝐬 𝐢𝐬 𝐏𝐚𝐥𝐩𝐚𝐛𝐥𝐞

This might seem like a cry for attention to many, but it’s a cry for understanding. Raising awareness about autism and disability is very important, but raising awareness for their parents/carers is equally important.

We all feel lonely from time to time, and there’s nothing worse than that feeling. No matter how much we surround ourselves with family and friends, sometimes the loneliness is real.

The loneliness of being a parent/carer of a disabled child is something not many people can understand except for those who have a child with a disability.

The sleepless nights, even when Afiyah finally falls asleep, are caused by the worry about her future and what will happen to her once I’m gone. This is what eats us carers from within.

When you become a carer, you start mastering the art of masking your feelings from the world because not many people will understand. You mask the sorrow behind a smile, and the everlasting pain behind each tear shed alone.

So yes, the loneliness is palpable, and sometimes, talking about it helps. Parents/carers like myself latch onto the tiniest bit of hope and take each day as it comes. After all, hope is what keeps all of us going—hope for a better tomorrow for our loved ones, hope for a brighter future, and hope for a safe provision for people with disabilities when we’re gone.

So when you come across anyone who is caring for a disabled person, try to understand the pain behind their smile and the loneliness behind their mask. If you see them struggling, understand their worries without them having to say it and show compassion towards their difficulties. Be patient, and you’ll see how much your compassion means to them. If you can’t do any of the above, just let them be, as there’s nothing worse than passing judgment and making things harder for them.

To all those feeling lonely at the moment, reach out to those who may understand your concerns or reach out to me. As I always say, never suffer in silence.

Stay safe and blessed, everyone! See you all in the new year 🤗